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ARCHIVES OF LEPROSY MAILING LIST
Archives of recent messages from Leprosy Mailing List (LML) managed by Dr Salvatore Noto.

Over the past few years, LML moderated by Dr Noto has become one of the most important online resource for promoting discussions about leprosy.

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Leprosy Mailing List – August 28th, 2007

 

Ref.:     Rehabilitation: Searching for an appropriate strategy for people affected by leprosy.

From:   Pannikar V., New Delhi, India


 

 

Dear Dr Noto,

 

I think if experts concerned with welfare of people affected by leprosy are serious and if our objectives are clear, then it is possible that we can launch on a rehabilitation strategy which will be integrated within the broader efforts to improve quality of life of all socially marginalized members of the community in a very positive way.  I believe that chances of success for an exclusive leprosy-centred rehabilitation strategy will be very limited. 

 

Best regards,

 

V. Pannikar

 

 

 

Rehabilitation:  Searching for an appropriate strategy for people affected by leprosy

 

 

Main concerns/issues to be addressed

Possible solution/Strategic approaches

1.

Perceived shift in the leprosy control strategy

In the past we have avoided and many times actively discouraged control programmes to spend too much time on this issue.  Programme managers should be convinced that this is not a shift but it is an important additional activity for leprosy control.  They will need appropriate technical and resource support to implement such a strategy.

2.

Introduction of outdated PoD and rehabilitation policies

There is a need to bring fresh ideas to this concept, probably from outside leprosy expertise.  Here we can be innovative and bold.

3.

Danger of slowing down integration efforts

Integration for sustainable control is the number one priority.  If this can be achieved, the long-term rewards are enormous for public health.  As rehabilitation issues involve mostly individuals who are no more regarded as leprosy patients, this initiative need to be seen as a human/social issue.

4.

Too little will be done by project approach, at high cost (time and money)

If uncontrolled or unguided, we will have useless small projects with high visibility but little impact on the magnitude of the problem.  We must go for a national Plans of Action with clear outcomes in specific timeframes.

5.

To be seen in a social context.

Rehabilitation is an emotionally attractive and sensitive issue due to religious, cultural and political conflicts of interests.  Can we remain focused on technical issue only?

6.

Emergence of new experts

Hope we can avoid this and find people who can genuinely contribute to development of best possible approaches.

7.

Re-inventing specialised projects for leprosy

Rehabilitation is a general issue for the community.  It need not be disease specific.  It is to address the issues of poverty, inequality and socio-economic persecution.  Can we handle this huge agenda?

8.

Lack of effective tools

Over the years, no new tools or effective strategies have surfaced.  Most current efforts are ineffective and benefit the donor than the receiver. Can we change this?

9.

Lack of interest and involvement of the community

Communities will not see leprosy-specific efforts as good for them. It may create jealousy, inequality and rejection from the community.  What messages to be given to get community involved?

11.

Lack of involvement of other sectors

Involving all sectors even at the local level, so that all who need services will benefit from it.  It is the only way a credible strategy can be implemented and sustained.

12.

What else?

?

 

 

 

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